From: Children and young people at the intersection of chronic illness and migration: a scoping review
Publication type | Journal article (n = 48) [54,55,56,57,58,59,60,61,62,63,64,65,66,67,68,69,70,71,72,73,74,75,76,77,78,79,80,81,82,83,84,85,86,87,88,89,90,91,92,93,94,95,96,97,98,99,100,101] Conference abstract (n = 8) [102,103,104,105,106,107,108,109] Chapter in an edited volume (n = 1) [110] Doctoral thesis (n = 1) [111] |
Methodology | Quantitative (n = 33) [7,8,9,10,11,12,13,14,15,16,17,18,19,20,21,22,23,24,25,26,27,28,29,30,31,32,33,34,35,36,37,38,39,40,41,42,43,44,45,46,47,48,49,50,51,52,53,54,55,56, 56, 57, 57,58,59,60, 60,61,62, 62, 63, 63, 64, 64,65,66, 66, 67, 67,68,69, 69,70,71,72,73,74,75,76, 78, 79, 82,83,84, 88, 90, 91, 95, 97, 98, 100,101,102,103,104,105, 107,108,109] Qualitative (n = 22) [54, 58, 59, 61, 65, 68, 70, 72, 77, 80, 84,85,86,87, 89, 92,93,94, 101, 106, 110, 111] |
Purpose | To describe clinical cases (n = 21) [53, 54, 57, 64, 67, 70, 72, 73, 75, 77, 78, 85, 93,94,95,96,97,98, 101, 104, 105] To explore the effect of migration status (and country/region of origin) and other socioeconomic disparities on access and outcomes (n = 13) [59,60,61, 63, 66, 68, 76, 79, 80, 91, 99, 101, 102] To assess research or practice methods (n = 8) [58, 65, 71, 81, 87, 88, 92, 103] To investigate HCPs’ (including interpreters’) attitudes and challenges (n = 7) [52, 55, 62, 69, 74, 82, 83, 106] To describe and understand migrant CYP’s and their families’ perspectives, experiences, needs, access, and preferences (n = 4) [56, 84, 86, 89, 90, 107, 108] |
Participant group | CYP (n = 39) [56, 57, 59, 60, 62,63,64, 66,67,68, 70, 73,74,75,76, 78, 79, 81,82,83, 87,88,89,90,91, 95, 97, 98, 100,101,102,103,104,105, 107,108,109,110,111] HCPs (n = 9) [54, 55, 58, 65, 72, 77, 85, 86, 94] CYP & caregivers (n = 2) [69, 106] HCP & caregivers (n = 4) [84, 93, 96, 99] CYP, caregivers, & HCPs (n = 1) [92] HCP & community leaders (n = 1) [80] |
Geographical focus | USA (n = 12) [55, 66,67,68, 70, 74, 77, 79, 80, 96, 97, 101] Sweden (n = 7) [65, 72, 73, 84,85,86, 89] Türkiye* (n = 7) [60, 75, 98,99,100, 104, 107] Jordan (n = 5) [56,57,58, 83, 90] Botswana (n = 1) [78] Chile (n = 1) [108] Denmark (n = 1) [63] Finland (n = 1) [76] France (n = 1) [69] Germany (n = 1) [102] Greece (n = 1) [109] Netherlands (n = 1) [94] New Zealand (n = 1) [93] Spain (n = 1) [82] Switzerland (n = 1) [54] Thailand (n = 1) [110] Multiple European countries (n = 3) [64, 88, 105] *Please note that while this paper uses the newly official name of Türkiye, many of the studies were conducted and published prior to this change — hence the use of ‘Turkey’ in some study titles and quotations |
Chronic illness | Cancer (n = 18) [55, 58, 68, 69, 72, 75, 76, 82, 84,85,86, 90, 91, 94, 96, 98, 104, 107] HIV (n = 10) [64, 66, 67, 78, 87, 95, 97, 105, 110, 111] Asthma (n = 6) [62, 63, 65, 73, 93, 109] Type 1 diabetes (n = 5) [70, 83, 88, 102, 108] Various unspecified conditions (n = 5) [54, 74, 77, 80, 92] Sickle cell disease (n = 2) [62, 103] Heart disease (n = 4) [56, 57, 81, 106] Kidney disease/end-stage renal failure (n = 3) [60, 79, 101] Cystic fibrosis (n = 1) [100] Beta-thalassemia (n = 1) [99] Stroke and cerebrovascular disease (n = 1) [72] Chronic pain (n = 1) [59] Various severe blood disorders (n = 1) [59] Various long-term conditions (epilepsy, postoperative paraplegia, blue rubber bleb venous malformation, and cerebral paresis) (n = 1) [89] |
Migration status of CYP | No specific status given (n = 34) [54, 55, 58, 61,62,63,64,65,66, 68,69,70,71,72,73, 76, 78, 80, 82, 84,85,86, 88, 92,93,94,95,96, 102, 105, 108,109,110,111] Refugee/displaced (n = 19) [56, 57, 59, 60, 67, 74, 75, 81, 83, 89,90,91, 98,99,100, 103, 104, 106, 107] International adoptee (n = 2) [67, 97] Undocumented (n = 2) [79, 101] Compact of free association migrant* (n = 1) [77] Visa holder (study, work, partner/family, permanent residency, tourist) (n = 1) [87] *A special condition for migrants from the Republic of the Marshall Islands and other Pacific Island sovereign states in the USA: ‘COFA [Compact of Free Association] migrants have the legal status of ‘lawfully present migrants’ rather than immigrants’ (McElfish et al., 2015, cited in Low et al., 2019, p. 54) |